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    • Resources
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  • Welcome
  • Learn more
    • About Us
    • Annual Report
    • Contact Us
  • Events
  • Programs
    • What We Offer
    • iCan! Programs
    • Partners in Education
  • Scholarships
    • What we offer
    • Community Scholarship
    • Educational Scholarships
    • IEP Scholarship
    • Swim Scholarships
    • Sleep-Away Camp
    • Oral Motor Clinic
    • Speech Therapy
    • ABA Scholarship Program
    • Kay Ness ND Scholarship
    • Scholarship Eval Form
  • Resources
    • About Down Syndrome
    • New & Expectant Parents
    • Resource Library
    • Newsletters
    • Florida DS organizations
  • Get Involved
    • Driving for Change
    • Tour of Champions Bowling
    • Join Us
    • Volunteer
    • 2023 Ford Bronco Giveaway
  • Make a Difference
    • Donate Now

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National / International Down Syndrome Organizations

  • National Down Syndrome Congress National Down Syndrome Society 
  • Global Down Syndrome Foundation 
  • International Mosiac Down Syndrome Association 

Educational Resources

  • Council for Exceptional Children 
  • Down Syndrome Education International 
  • Down Syndrome Foundation of Orange County (CA) / The Learning Program 
  • Educational Resources Information Center (ERIC) is a national information system funded by the U.S. Department of Education's Institute of Education Sciences to provide access to education literature and resources. 
  • eReading Pro (Literacy) 
  • Florida Department of Education 
  • Florida Diagnostic and Learning Resource System 
  • Florida Inclusion Network 
  •  HEATH Resource Center (Online clearinghouse on postsecondary education for individuals with disabilities) 
  • IEP Coaching & Advocacy 
  •  Learning Disabilities Association of America 
  • Literacy Connections 
  • Love and Learning (Literacy) 
  • National Association for Childhood Development (Down Syndrome Microsite) 
  • National Dissemination Center for Children with Disabilities 
  •  No Child Left Behind Act (NCLB) 
  •  A Nuerodevelopmental Approach to Learning 
  • The IEP Advocate 
  • The Technical Assistance Center on Positive Behavioral Interventions and Supports 
  • Think College:  College Options for Individuals with Intellectual Disabilities 
  • Time4Learning 
  • Tools for Students Success An assortment of helpful publications for parents 
  • US Department of Education Office for Civil Rights Office of Special Education Programs 
  • Wrights Law 

 

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Expecting Parents

  • Brighter Tomorrows 
  • Down Syndrome Pregnancy (eBook for expecting parents) 
  • Light at the End of the Tunnel (brochure) 
  • National Down Syndrome Congress - Expectant Parents Site 
  • The Journey Ahead - Imagine the Possibilities (video)  What Parents Wished They Had Known - Reflections on Parenting a Child with Down Syndrome 

Health / Nutrition / Therapy Resources

  • A Metabolic Overview of Down Syndrome (article starts on page 3) 
  • Beckman Oral Motor 
  • Center for Genetic Disorders of Cognition and Behavior 
  • Communicating Partners 
  • Down Syndrome Health Issues 
  • Freedom Ride (Orlando) 
  • Growth Charts for Children with Down Syndrome 
  • Hanen Program (Communication) 
  • Health Care Guidelines for Individuals with Down Syndrome 
  • Non GMO Shopping Guide 
  • NuTriVene-D Targeted Nutritional Intervention 
  • Super Duper (Therapy / Educational Materials) 
  • Talk Tools Oral Placement Therapy 
  • Woodbine House 

Legislative Advocacy Resources

  • Governor's Commission on Disabilities (FL)  
  • Partners in Policy 

Research Related Resources

  • Down Syndrome Education International
  • Down Syndrome Research Foundation 
  • Down Syndrome Research Online Advocacy Group International Association for the Scientific Study of Intellectual Disability Research Down Syndrome Stanford School of Medicine Down Syndrome Research Center 

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Resources Specific to the State of Florida

  • Agency for Persons with Disabilities 
  • ARC of Florida 
  • Bright Feats (Medical, Education & Special Needs Resource/Publication) 
  • Children's Medical Services / Early Steps 
  • Florida Developmental Disabilities Council 
  • Florida Directory of Early Childhood Services 
  • Hope Haven Children's Clinic 
  • Nathaniel's Hope 
  • Special Olympics Florida 
  • Down Syndrome Association of Brevard
  • ABLE United 

Simply Unique Resources

  • AblePlay 
  • Able Trust (Florida Governor's Alliance for the Employment of Citizens with Disabilities) 
  • Band of Angles 
  • Best Buddies International  
  • Disability Is Natural (People First Language) 
  • Downs Designs (clothing) 
  • Down Syndrome Social Network 
  • Exceptional Parent Magazine 
  • Einstein Syndrome - Down Syndrome with a Positive Attitude 
  • Institute for Community Inclusion 
  • Institutes for the Achievement in Human Potential 
  • International Organization on Arts and Disability 
  • Independent Living Institute 
  • Karen Gaffney Foundation 
  • National Association for Down Syndrome 
  • National Council on Indepenent Living 
  • PACER Center:  Champions for Children with Disabilities 
  • Reece's Rainbow (Adoption, Advocacy, Outreach & Aid) 
  • Riverbend Down Syndrome Parent Support Group 
  • Sibshops - Sibling Support Project 
  • World Down Syndrome Day (3/21) 

Spanish Language Resources

  • 12 Claves para la autonomia de las personas con sindorme Down (brochure) 
  • Bibloteca de Salud:  Sindrome de Down 
  • Down España 
  • El Sindrome Down 
  • Medline Plus - Informacion de Salud:  Sindrome Down

 *The organizations and resources on this page are for informational purposes only The FOUNDATION does not endorse or promote any of them for any reason other than to provide access to useful resources in a consolidated area.   If there are any resources we have missed that would be helpful to this community, please send the information and link to info@dsfflorida.org. 

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Down Syndrome Foundation of Florida 

PO Box 533462 Orlando, FL 32853-3462

info@dsfflorida.org 

phone:  407.538.3537

The FOUNDATION is a 501(c)3 your donation is tax deductible 

 EIN number:  27-2436041


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